The Xeroderma Pigmentosum Society (XPS) helps to inform families about the rare genetic disorder, and helps XP families and patients. (Xeroderma Pigmentosum Society)
"The XP Family Support Group is dedicated to improving the quality of life of those affected with xeroderma pigmentosum through education and support services, researching effective treatments, and ultimately finding a cure." (XP Family Support Group)
"The XP Support Group aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families. The Group raises funds for research, gives grants for UV protective equipment and products, assists families to attend night time camps in the UK, USA, France & Germany or respite in a protective environment." (XP Support Group)
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